Soon an individual's genome can be sequenced at accessible cost. Like the availability of books provided by the printing press, the ease of communications by cell phones, and the access to information via the internet, access to information that is broad, deep, and personally significant changes society, its laws, and its politics. Complete sequence information of individual genomes raises questions about utility, identity, privacy and comprehension. The concept of open source genetic information is a reality that will tax the legal framework just as much as internet freedom challenges legal tenets. Direct to Consumer genomics where a physician opinion is bypassed will become more common.
The sequencing of genomes provides the substrate for synthetic biology in which whole organisms can be created de novo through stitching DNA together into entire genomes. This symposium will explore the ethical, societal, and legal issues involving the accessibility of fast, inexpensive, and complete genomic sequencing.
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Programme (Single Track Programme)
Day One - 1 Nov 2009 (Sunday) |
8:00 AM |
Registration |
9:00 AM |
Opening Address by Edison T. Liu |
9:05 AM |
Welcome Address by Stylianos E. Antonarakis |
| 9:10 AM - 9.25 AM |
Welcome Lecture by Ala Alwan |
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Session 1 – Science & its Capabilities
Chair: Edison T Liu
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| 9:25 AM - 10.10 AM |
Olufunmilayo Olopade
Advances In Breast Cancer: Pathways To Personalized Medicine
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| 10:10 AM - 10.30 AM |
Tea Break
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| 10.30 AM – 11.15 AM |
Edison T. Liu
Genomic Sequencing: The Potential Impact Of The Technologies On Science And Society
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| 11.15 AM – 12.00 PM |
Klaus Lindpaintner
Future Of Health Care Industry – Strategies For Personalized Medicine
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| 12.00 PM – 12.45 PM |
Mark McCarthy
What will the new sequencing technologies deliver for science and society?
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| 12.45 PM – 2.15 PM |
Lunch @ CICG Restaurant (Level 1)
HUGO Council Meeting @ Room 15 (Level -1, 1.15 PM –2.15 PM)
Poster session 1 (Level 2, 1.30 PM – 2.15 PM)
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Session 2 – Personal Genomics: Redefining Privacy, Choice and the Internet
Chair: Ruth Chadwick
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| 2.15 PM – 3.00 PM |
Ruth Chadwick
Redefining Privacy, Choice and the Internet
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| 3.00 PM – 3.45 PM |
Helen Nissenbaum
Privacy, Technology, Policy, And The Integrity Of Social Life
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| 3.45 PM – 4.05 PM |
Tea Break
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| 4.05 PM – 4.50 PM |
Linda Avey
Personal Genetics--Lessons Learned and the Opportunities Ahead
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| 4.50 PM – 5.35 PM |
Jeantine Lunshof
Redefining Privacy: Public Genomes & Open Consent
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| 5.35 PM – 6.20 PM |
Bartha Maria Knoppers
Personal Genomics and Privacy
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| 7.30 PM – 9.30 PM |
Conference Dinner at InterContinental Geneve Hotel
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Day Two - 2 Nov 2009 (Monday) |
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Session 3 – Genetic Determinism, Discrimination, Exceptionalism and Selection
Chair: Stylianos E. Antonarakis
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| 9.00 AM – 9.45 AM |
Stylianos E Antonarakis
The Medical Genome
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| 9.45 AM – 10.30 AM |
Alastair V. Campbell
What – if Anything – is Special about 'Genetic Privacy'?
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| 10.30 AM – 10.50 AM |
Tea Break
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| 10.50 AM – 11.35 AM |
Thomas H. Murray
Genetic Exceptionalism: A Reassessment
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| 11.35 AM – 12.20 PM |
David Cox
Genetic Determinism and Real Life: The Application and Misapplication of Human DNA Sequence Variation
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| 12.20 PM – 2.20 PM |
Lunch @ CICG Restaurant (Level 1)
HUGO Ethic Committee Meeting @ Room 16 (Level 1, 1.00 PM – 2.20 PM)
HUGO Journal Editorial Board Meeting @ Room 15 (Level 1, 1.00 PM - 2.20 PM)
Brocher Foundation Short Presentation @ Hall 1 (1.00 PM – 1.45 PM)
Poster Session 2 (Level 2, 1.20 PM – 2.20 PM)
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| 2.20 PM – 5.20 PM |
Session 4- Discussion Forum
Chair: Edison T Liu, Ruth Chadwick, Bartha Maria Knoppers
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| 3.40 PM – 4.00 PM |
Tea Break
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| 6.30 PM – 8.45 PM |
Public Lecture* at University of Geneva (CMU Hall B400)
Stylianos E. Antonarakis & Bartha Maria Knoppers
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*Buses depart from CICG to CMU at 5.35 PM sharp (30 minutes journey). Return buses depart from CMU at 9.00 PM and stop at Railway Station Cornavin (10 minutes journey) and InterContinental Geneve Hotel (10 minutes journey).
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Day Three - 3 Nov 2009 (Tuesday) |
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Session 5 – Equity and Justice : Access & Participation in the Developing World
Chair: Abdallah Daar
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| 9.00 AM – 9.45 AM |
Abdallah Daar
Genomics Initiatives in Developing Countries
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| 9.45 AM – 10.30 AM |
Raj S. Ramesar
Parent of Origin Effect: Will Africa be Relegated to the Role of a Neglected Parent Watching its Successful Children Bicker Over Their Inheritance
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| 10.30 AM – 10.50 AM |
Tea Break
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| 10.50 AM – 11.35 AM |
Partha Majumdar
Ethical Dilemmas in the Conduct of Genomic Research: When Technological Developments Encounter Economic and Educational Underdevelopment
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| 11.35 AM – 12.20 PM |
Gerardo Jiménez-Sánchez
Genomic Medicine in Mexico: Progress and challenges related to equity and justice.
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| 12.20 PM – 1.50 PM |
Lunch @ CICG Restaurant (Level 1)
Poster Session 3 (Level 2, 1.05 PM – 1.50 PM)
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Session 6 – Open Access, Open Markets: Intellectual Property?
Chair: Bartha Maria Knoppers
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| 1.50 PM – 2.35 PM |
Charles Auffray
Redefining intellectual property in the transition from genomics to systems medicine
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| 2.35 PM – 3 20 PM |
Timothy Caulfield
Are Gene Patents the Problem?: A Look at Emerging Evidence
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| 3.20 PM – 3.40 PM |
Tea Break
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| 3.40 PM – 4.25 M |
Philippe Ducor
<< Open access >> aspects of DNA patenting
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| 4.25 PM – 5.10 PM |
James Toupin
The Development of the Law of Gene Patenting in the United States
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| 5.10 PM – 5.20 PM |
Closing
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